2023 FAPA Award Winner

After twenty-four days in Medical City's Neonatal Intensive Care Unit in Dallas, Texas, Joshua was sent home with his parents, Paul and Alison. The doctors said, "If your son is alive in a year, bring him back and we'll re-evaluate him." The doctors couldn't possibly have known what would take place over the next 15 years and 11 months.

Joshua's will to live, mixed with the resolve and relentless fortitude of his mother and the determination of his NFL father would change the face of Myotubular Myopathy (MTM) and neuromuscular research. History was destined to be written.

It's a story of a boy, a dog and a cure.

"The truth of the matter is nobody is perfectly normal. We all have various types of characteristics, but one thing is for sure; none of us are the same and none of us are completely different."

Joshua Miles Frase 2009 15 years of age